Ebook: Health Services for Cancer Survivors: Practice, Policy and Research

Health Services for Cancer Survivors Practice, Policy, and Research Michael Feuerstein and Patricia A. Ganz, editors

Between early detection and current medical advances, more cancer patients are living longer post-treatment. But all too often, survivors’ lives are complicated by medical, psychosocial, and economic challenges that their providers downplay as the “new normal.” Health Services for Cancer Survivors replaces this scenario with an integrative, evidence-based framework for improving the health of survivors over the long term, across clinical settings and specific diagnoses. Emphasizing an interdisciplinary team approach, contributors review the current state of survivor care and model a proactive future. Human factors, particularly in the areas of symptoms and symptom reporting, health costs, and individualized care, are highlighted as keys to survivors’ health, well-being, and functioning. The book offers diverse perspectives, informative data, and real-world case studies as it:

• Defines quality health care in the context of cancer survivor experience.
• Introduces the Cancer Survivorship Care Plan, a first-steps strategy for integrating survivor care.
• Pinpoints specific areas for improvement, including symptom management, health behaviors, rehabilitation, psychological well-being, and disparities in health care access and delivery.
• Outlines practical strategies for optimizing primary, oncological, palliative community-based, and end-of-life care.
• Provides detailed information on epidemiology, health economics, and other areas critical to clinical decision-making.
• Analyzes the new health care reform measures as an opportunity to reform survivor care.

Health Services for Cancer Survivors is essential, stimulating reading for a wide range of practitioners, including primary care physicians, health psychologists, social workers, nurses, physical and occupational therapists, and public health professionals.

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Health has been conceptualized by world and national health organizations (WHO, CDC, Healthy People 2010) as more than the absence of disease.  It involves a focus on physical, psychosocial, and functional aspects of life as well as the prevention of future illnesses. At this point in the development of quality health care for cancer survivors, there is sufficient knowledge and expert opinion to push efforts forward to improve the health of cancer survivors. Clearly there is more research in the most prevalent forms of cancers (e.g., breast cancer) than others that provide us with guidance on how to optimize their health, but there are data on other forms of cancers that can also better inform practice. There may also be general care practices that can cut across cancer types. There has been an emergence of epidemiological and clinical research in cancer survivors that can form the basis for a revolution in the quality and nature of health care that survivors receive. This book not only provides the reader with diverse perspectives and data but also integrates this information so it can serve as the foundation necessary to improve and maintain the health of cancer survivors. Reporting of symptoms to health care providers is a complex, multi-determined problem influenced not only by the pathophysiology but also, as we have learned over the years through pain research, by societal, cultural, and biobehavioral factors. This book will consider this important aspect of follow-up for millions of cancer survivors because of the strong reliance on symptom reporting for clinical decision making.   In order for us to generate meaningful and effective treatment, we need to better understand the symptom experience in cancer survivors. This book provides much information that will assist us to better understand and manage this complicated end point. The presenting problems need to be articulated and “conceptualized” as clearly as possible by both parties so appropriate actions can be taken. Since health care costs are a major concern for patients, payers, and providers, this area will also be addressed in all the relevant sections. In taking an interdisciplinary perspective, this book illustrates the importance of a team approach to the improvement of health care and associated health, well-being, and functioning in cancer survivors. The 17 chapters cover critical topics of which physicians and providers of all types must be aware in order to provide the most comprehensive and responsive care for cancer survivors. All of the clinical care chapters include case studies to illustrate the real-world application of these approaches in cancer survivors. Information about sources of referral both within and outside the traditional health care communities will be provided in tabular form. There is no other text that provides both an overview of the problems and their challenges, case illustrations of direct application, and the reality of reimbursement for such care. The editors hope that there may be no need for the clinician or the survivor to adapt to a “new normal” if the presenting problems are understood and handled from an interdisciplinary perspective as outlined here.