Ebook: Public Policy in ALS/MND Care: An International Perspective
- Tags: Political Science and International Relations, Public Policy, Health Policy, Health Services Research, Health Administration
- Year: 2021
- Publisher: Springer Singapore
- Edition: 1st ed.
- Language: English
- pdf
This book focuses on the public policy and political/ethical dimensions of ALS/MND across a wide selection of countries and argues for the need of a multidisciplinary and international approach. Policy issues addressed include adequacy of funding for research and care, payment policy and regulatory functions of public and private insurers, long-term services and caregiver support, public health and prevention efforts, access to genetic testing and assisted technologies, ensuring a competent and adequate workforce especially for hands-on caregivers, and the challenging issues of providing palliative and hospice care for ALS/MND patients, advance directives and assisted suicide that face policy makers in all political jurisdictions.
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